Hi All,
I wanted to share a site for people going through hardships that may want to set up an account. I know some of you already have one but for those who don't, here. Its called caringbridge.org its for people who are going through a health crisis, treatment or recovery. You can journal and have a guest book and reach people privately. Since I am new here if any of you moderators know where this might be better placed. Please do. I tried to paste the link but I wasn't successful.

Hi Sarah, 
Glad your week went well! I'll light another candle for you and your daughter.

Grateful to be here!
What a gift and connection builder!
Love and Gratitude,
Love who You Are

Hi Sarah, prayers and warmest thoughts sent to You, Sophie and all your family.
Namaste
Glenys x

Dear Sarah . . .
Hopsice is a wonderful organization and I am so very happy that you are taking advantage of what they have to offer. I'm pleased that little Sophie got herself a little "spoiled" . . . we all need to be spoiled once in awhile.
I hold you in my thoughts and prayers as do the others now that she is back home
with much love . . .
sparrow

everything counts... ♥

Dear Sarah, I went to your daughter's web-site and she she is an amazing girl. Please let her know that she is in our thoughts and prayers. I also lit a candle for her again.

Dear Sarah and Sophie,
I am thinking of you both and will light a candle for you... sending light and hugs,
gina and jackory

Hello to everyone. Just wanted to give you a update on Sophie. She isnt very well at the moment. She had a fall a week ago and has been off her feet. She is just starting to recover and has a viral infection with a nasty chest infection, which can be very serious. Please could you send some get well vibes for Little Sophie.
Thankyou
Best wishes
Sarah.
xxx

Proud supporter of life limited Sophie Godber
www.sophiegodbertrust.com

Dear Sarah,
I will light a candle for Sophie now. I am so sorry to hear she is so unwell.
 
Blessings to you both, Jude

Love is the only way

Dear Sarah . . .
I am sorry for the sad news of little Sophie's fall and now this viral infection.
You can be sure I will keep Sophie in my thoughts and prayers, and light a candle for her
with love . . .
sparrow

everything counts... ♥

I lit a candle for her.  I am also holding you in my heart.

With Love,
Kriann

[image]http://img185.imageshack.us/my.php?image=bcandle3fq9.gif[image]

Dear Sarah,
 
I am so sorry for Sophie's setback, and hope she makes a good recovery!
 
I'll light a candle for her and keep her in my prayers,
 
Much love,
Edda

Peace and joy!

Dear Sarah,
I am sorry to hear Sophie's not well, healing sparkling dust on its way to her, I am off to light a candle for you both.
love and light
gina and Jackoryx

I am also going to light a candle for Sophie, praying that she may get well soon.

Love,
Juliana
_____________________________
Speak Peace in a World of Conflict

Monday 8th December 2008
Today we had a hospital appointment at Nottingham QMC. Sophie had a lung function test and xray of her spine. Medical everything came back with no change from last year which has made my christmas. But then we had a chat with physio and family care support from the muscular dystrophy campain.
Sophie all of a sudden became very down and start say how she gets so angry about having CMD and "she never gets what she dreams off". The physio asked her what her dreams were and she said she wanted to ice skate, jump, surf, skateboard and dance. She told them that as she couldnt do this she was not a "Real Girl".
My beautiful little girl feels like only half a person. She got worryed about the future and that she will stop walking and need her chair.
I know she is finding things hard and I cant make it ok for her. I wish she could have all she dreams of too. And I wish she could see the wonderful person she is and all the amazing things she has acheived

Dear Sarah,
That is so sad, and my heart goes out to you and Sophie. It is so hard to tell a child that being 'real' has nothing at all to do with what we can or cannot do. The fact is she really wants to do these things.
I'm glad though, that healthwise the news is good.
 
Bless her! I do hope something comes along to lift her spirits.
 
Blessings to you both, Jude

Love is the only way

Dear Sarah . . .
I am so sorry that little Sophie is having such a hard time, and does not feel like a "real girl". . . Would it be appropriate to read her the story of the "Velveteen Rabbit"? I immediately thought of this story when I read your message . . . it is all about what makes one "real"...a beautiful story.
Perhaps it could help her understand that what is real is inside, and you would have the extra joy of a good, sit-down read time with her.
It is hard when one so young is denied the normal dreams of a little girl. She dreams of things that she cannot physically do. Perhaps she could be inspired by a role model who has fulfilled her dreams by doing things other than the physical . . . like a wonderful writer or a beautiful singer, or a great humanitarian . . . someone who has overcome physical disability through the powers of heart and mind like Stephen Hawking?
Just a few thoughts I send your way. Blessings to you who care so deeply for this little girl. I wish for your family a miracle for Sophie . . . that she be able to get a peek at a greater world beyond her debilitating limitations.
with much love to you and special thoughts during this holiday season . . .
sparrow

everything counts... ♥

Dear Sarah,
 
I am so sorry that Sophie feels down and so acutely aware of everything she cannot do! I think Sparrow's suggestions are excellent. Perhaps Sophie can find something where she can excel and even be better than those not limited like her. We tend to identify with what we can do, not who we are. It is a hard lesson to learn so early in life.
 
My heart and prayers go out to you and Sophie,
Much love and warm hugs,
Edda

Peace and joy!

Hi Sarah,
I am sorry to learn about Sophie's emotional struggle.  I hold her and you in God-Light and ask that God will provide comfort.

With Love,
Kriann

[image]http://img185.imageshack.us/my.php?image=bcandle3fq9.gif[image]

Sarah, Prayers and positive thoughts and wishes for Sophie and you!
Namaste
Glenys x

Thank you all for your kind thoughts. I have ordered Velveteen Rabbit book thankyou for letting me know of that one. We have tried sports with Sophie she has played wheelchair foot ball and ice skating in her power chair but it is never enough and she gets very down after which can last for weeks. I wish I could make every thing better for her and give her what her heart dreams of. Thankyou for your support it means so much.
xxx

Proud supporter of life limited Sophie Godber
www.sophiegodbertrust.com

Dear Sarah
 
I will indeed light a candle for your little girl Sophie and for her Mummy as well.
 
Your daughter sounds so beautiful it's so sad through her illness she can only dream of the things her body and mind want to do.
 
Sarah what about Basket ball I have seen children play this in wheel chairs and their faces light up with delight.
 
Sarah my thoughts are with you both they really are.
 
Take care Sandraxx

The greatest thing you'll ever learn is just to love~and be loved in return♥♥