Life Limited Daughter needs your prayers

RE: Life Limited Daughter needs your prayers (sandra67)

Mon, 16 Feb 2009 18:49:55 GMT

Just hoping I am a good enough mum to give it to them both.

Dearest Sarah,

You are the best Mum in the world for your children you really are.

I am so sorry things are so incredibly hard for you all right now.

I hope with all of my heart things change for you all.

Sarah I would love to raise money for Sophie , I raise money

for children's charities when at all possible.Please let me know

how I can help you...

Looking forward to hearing from you ,Sandraxxxx

RE: Life Limited Daughter needs your prayers (lovewho.u.r)

Mon, 16 Feb 2009 18:46:48 GMT

Hi Sarah,

Don't forget they are always with you.....every moment!

Sending you love and light .......

RE: Life Limited Daughter needs your prayers (kriann)

Mon, 16 Feb 2009 07:22:14 GMT

I'm sorry to hear of your son's diagnosis. In addition to your daughter's health issues, this is a time you need to reach out for support. You can't do this alone. We are here for you so keep sharing and venting. Also, I wonder if there is a support group online or at a local hospital, etc., to help you with all this.

I hold you and your children in my heart.

With Love

RE: Life Limited Daughter needs your prayers (lilsparrow)

Mon, 16 Feb 2009 07:16:49 GMT

Dear Sarah . . .
I hope that you are able to get the chair you need for Sophie.
She has been a very brave little girl who has a very brave mother . . .
my heart sunk for you when I read of your new trouble with your little boy.
As Edda has said though,
early diagnosis can mean early treatment.
Blessings for your family Sarah,
as you walk this difficult path.
Please know that you are very much in my thoughts and prayers
with much love . . .
sparrow

RE: Life Limited Daughter needs your prayers (lovewho.u.r)

Sun, 15 Feb 2009 20:09:59 GMT

Hi Sarah!

Praying for you to have the daily strength you need to support the best outcome for your children.

Praying someone shares the load and is their for you when you need a break!

I'll light another candle for you!

RE: Life Limited Daughter needs your prayers (Hildegard)

Sun, 15 Feb 2009 17:52:11 GMT

Dear Sarah,

Thank you for letting us know how you are doing! I hope you can get the special chair that might make Sophie more comfortable. I am sorry about the diagnosis of your two year old. The one good thing is that it was made early so that treatment can begin and help him in his development.
My heart goes out to you with all your cares!

I'll light a candle for you and keep you in my prayers!
Much love,
Edda

RE: Life Limited Daughter needs your prayers (sarah1982)

Sun, 15 Feb 2009 17:45:10 GMT

Hi all and thankyou for your thoughts. Sophie is still struggling with pains and trying to get comfortable. We are thinking of trying to raise funds for a specialist chair, that we hope will offer her some comfort. Also this week my 2 year old son has been diagnosed with Autism. So feel a bit stressed at the moment there is a lot of support that both my children need. Just hoping I am a good enough mum to give it to them both.

RE: Life Limited Daughter needs your prayers (lovewho.u.r)

Sat, 14 Feb 2009 16:30:58 GMT

Hi Sarah,

Happy Valentine's Day!

I hope things have improved since your last message here!
I am praying for all of you and that her physical therapy will improve and that her pain will lessen.

May God give you all the strength to live with your daily trials!
May love be your guide and light shine on your days and patience be with you. I will light a candle for you Sarah.

Love,
Diane

RE: Life Limited Daughter needs your prayers (lilsparrow)

Sat, 14 Feb 2009 11:30:48 GMT

Dear Sarah . . .
Little Sophie has been on my mind . . .
How is she doing?
with love . . .
sparrow

RE: Life Limited Daughter needs your prayers (mamaluvskids)

Sat, 24 Jan 2009 20:35:51 GMT

DEar Sarah, I'm sorry to hear about Sophie and her pain. I know this has to be hard on you. I hope things take a turn for the better. I will light a candle for you and your family now.

RE: Life Limited Daughter needs your prayers (lilsparrow)

Sat, 24 Jan 2009 17:42:15 GMT

Dear Sarah . . .
I am happy that you have returned to share with us how little Sophie is doing. I am sorry to hear the news is not good.
Like Edda says it is a hard thing to try and balance pain medication with the energy Sophie needs to be walking . . . very hard for us all, but especially for a child.
I hold you and Sophie and your family in my heart
as you address this new challenge,
and I hope you will let us know how she is doing.
with much love for you and for Sophie . . .
sparrow

RE: Life Limited Daughter needs your prayers (sandra67)

Sat, 24 Jan 2009 16:17:19 GMT

Dearest Sarah,

My thoughts are with you and little Sophie right now.No one wants to see anyone in pain and when it's your own child it is heart breaking.

Sarah I have a good friend who is a child counsellor and she works wonders on all children she really does.I am sure in many ways couselling will help both Sophie and her Mummy.

Take care Sarah , I hold you both so close to me in thought and prayer.

Sandraxx

RE: Life Limited Daughter needs your prayers (Hildegard)

Sat, 24 Jan 2009 15:55:13 GMT

Dear Sarah,

Like Juliana and Jude I am so very sorry to hear about Sophie's pain that keeps her from walking. I understand your concern about pain medication and her losing the ability to walk, a dilemma that is worrisome to you. I hope the councellor will be of help!

I keep you and Sophie in my heart. I will light a candle for both of you!

Much love and warm hugs,
Edda

RE: Life Limited Daughter needs your prayers (buttington)

Sat, 24 Jan 2009 15:32:29 GMT

Dear Sarah,
I'm so sorry to hear the news of Sophie's pain, and I feel how hard it is for you too.
I'm glad you came to the Forum. I will light a candle for you both.
Love, Jude

RE: Life Limited Daughter needs your prayers (J1937)

Sat, 24 Jan 2009 15:11:01 GMT

Dear Sarah,

I am so sorry to hear of Sophie´s pain, which, of course, you feel, too. I am keeping your concern in my heart, and I am going to light a candle of Hope for both of you.

Much Love,
Juliana
_____________________________
Speak Peace in a World of Conflict

RE: Life Limited Daughter needs your prayers (sarah1982)

Sat, 24 Jan 2009 14:47:28 GMT

Hi to all.
Sophie has been having a lot of pains just recently in her legs and has wanted to spend most of her day in her powerchair. The physio is concerned she may never walk again if she doesnt try soon.
She cant have to strong pain killers as they contain muscle relaxtion and this will make her floppyer and effect her heart and lungs.
She is seeing someone on thursday as a councellor. Hope it helps her and me for that matter. Feel so low at the moment. I just want to hold her forever.

RE: Life Limited Daughter needs your prayers (Hildegard)

Mon, 05 Jan 2009 15:42:55 GMT

Dearr Sarah,

Th hospital you mention is quite famous, a name known to pediatricians here in the U.S.. I hope it will be a place of help and hope for you.

I keep you and Sophie in my prayers,
Much love,
Edda

RE: Life Limited Daughter needs your prayers (lilsparrow)

Mon, 05 Jan 2009 15:20:17 GMT

Dear Sarah . . .
Perhaps the news will be good.
I too keep a candle lit and a prayer in my heart for you and for beautiful little Sophie
with much love . . .
sparrow

RE: Life Limited Daughter needs your prayers (buttington)

Mon, 05 Jan 2009 14:51:31 GMT

Dear Sarah,
Blessings for you and Sophie. I will light a candle for her.

Love, Jude

RE: Life Limited Daughter needs your prayers (sarah1982)

Mon, 05 Jan 2009 12:25:04 GMT

I hope you all had a lovely christmas. Ours was. We recived a letter from Great Ormond Strret Hospital on Christmas eve as they want to see Sophie this. Its a little frigtening. I pray this year brings us closer to a cure for Sophie.